Ichthyosis Care

(note: This is the care we use with Ethan who has nb-CIE ichthyosis (probably) that presents with thickened skin/small white scaling/flexure ridging/blistering & was a collodion/collodian baby.  We hope that this will provide you with some new ideas, but your experience may be much different and this website should not replace a physician's advice.)

These links are under construction, but are constantly being updated.  Our routines continue to change & we'll update as soon as we can when we change Ethan's routines.

 

*Skin Care 

Want to share your skin care tips?  Email the webmaster: info@ichthyosis.us

*Temperature

* Sun Exposure

*Ears/Eyes/Nails

*Diapers/Wipes

*Clothing

*Bedding

*Mealtimes/Feeding/Drinking

*Therapy for Ichthyosis-Related Issues

*Medic Alert Bracelet