Raising Awareness

    When we have a child with Ichthyosis, we are given many opportunities to raise public awareness of this condition.  How we handle questions and comments speaks volumes to our affected children.  It can be difficult to deal with even well-meaning comments and questions.  If I have time and the person is well-meaning, I try to kindly answer/explain to them what they wish to know.  If I do not have time or if the person is less than kind, I have found that awareness cards are very helpful.  FIRST has some terrific cards you may order.